Thursday, October 29, 2020

Shauna's Cancer Journey 2






 at my infusion center⁷0q getting ready for round 5 of chemo. My last one was June 1, so I’ve had a long break interspersed with two major surgeries between.
⁶
Thanks to all the prayers, this round of chemo was my easiest one yet! Side effects have been very minimal so far. I enjoyed chatting with another patient during my whole chemo infusion. 

10/26/2020
In response to someone's post on Facebook:
I’ve had five rounds of FOLFOX so far. My hair got very thin, but not bald. I keep cold sensitivity at bay through icing during the infusion, but still get some cold sensitivity in my throat. I sometimes fight with nausea/vomiting and diarrhea. I was given a lot of med options to help with both. I always get extra sleepy and exhausted, too


10/28/2020
I had chemo #6 this morning and it was much more difficult than last time. TMI warning- I had nausea, vomiting, and diarrhea shortly after getting home. I then felt freezing even with a pile of blankets on me. I spiked a fever of 101.6 including muscle aches and chills. My oncologist sent me to the ER to get evaluated. That’s where I am now. I won’t have any answers for 3-4 hours, most likely. With the fever, they are worried about infection somewhere. PS the hat is to help me stay warm.
10/30/2020
I’m still in the hospital, mainly waiting for test results and getting IV antibiotics. I’m feeling better and have no fever now. I’ll probably go home tomorrow. Jeff is able to be with me since I tested negative for Covid.8 8th
Thank you all so much for the much love and many prayers! I feel very lifted and blessed! ❤️

11/7/2020
I’m so grateful for my Savior! His love has truly carried me through many painful experiences (cancer, surgeries, losing a child, and many others). I love Him so much! ❤️
Kade Fisher wrote this.
That night in Gethsemane, Jesus became you.

He became me too. He became every single one of us. He experienced every single terrible moment of our lives.

That night, He went through the agony of chemotherapy.

That night, He was a victim of assault.

That night, He came out of the closet and was kicked out of the house.

That night, He didn't know how He was going to feed His family.

That night, He overdosed.

That night, He battled depression and anxiety, and He considered suicide.

That night, He lost a child.
That night, He felt hopeless. He felt terrified. He felt abandoned by His friends, and abandoned by His God.

Whatever you have felt, He felt it too. He felt all the pain and anger and sadness and loneliness that you have ever felt. He knows everything you've done, and everything anyone has ever done to you. He knows you perfectly.

And He still loves you.

In fact, He loves you not in spite of knowing you perfectly, but BECAUSE He knows you perfectly. He loves you more than you can imagine. Even when you don't love yourself—ESPECIALLY when you don't love yourself—He loves you.

His love will never change or fade away, just as your worth will never change or fade away. You are a literal child of Heavenly Parents, the King and Queen 8 the universe. That makes you precious. Your worth is infinite.

Jesus Christ volunteered to feel what you feel, to suffer what you suffer, because of that love He has for you. He took it all on Himself so that He can know how to help you and heal you.

It may not happen right now. It may not happen soon. But He will help you. He'll take away your pain. And until He can, He'll be there to strengthen you so you can handle it, to carry you when you're too weak, and to hold you so you're not alone.

Because of Him, there is always hope. The light is always there, because He is the Light.

(Painting: Gethsemane by Adam Abram)

11/11/2020
I was given a reprieve from chemo today! My white count was too low, so we are delaying for 1 week.97 I’m so happy! Another benefit of delaying chemo is that my following treatment will not be the week of Thanksgiving 😊. I’m looking forward to a week of feeling good! ❤️

11/19/2020
My infection fighting white cells went down even lower, so I can't have chemo again. We will try again after Thanksgiving. The good news is I’m feeling well! I just need to be extremely careful to not get sick, especially with Covid.

11/20/2020
I have so much to be grateful for! Between now and Thanksgiving I will share some each day. 

The number one spot certainly goes to Heavenly Father and His son, Jesus Christ! Everything I have and am is due to them and their love for me! The grace and mercy they give me, truly lifts and saves me!

Second, I’m so grateful for my amazing husband of 34 years! I knew he was a good man when I married him but he has become a giant of a man over the years through war deployment, losing a daughter, and being my rock through cancer. He has never shied away from loving or helping me through the “ickyest” mess or hardest emotion! 

#givethanks

11/21/2020
I’m so grateful for the four precious children that God sent to us! I only got to have Cassie for just shy of 21 years, but I know that she is watching over me from Heaven. I treasure each moment that I get to spend with them! 

I’m very grateful for 9 grand children! I love each of them with all my heart! I love to cuddle with them and read to them. Kissing the babies is my best medicine! ❤️
#givethanks

11/22/2020
Sunday gratitude
I’m so grateful for my extended family! I have 6 siblings as well as my mom, many aunts and uncles, and 9dozens of cousins. My dad, all grandparents, and two aunts are in heaven, but still watch over me. During the pandemic, my sibs and Mom all gather for a Zoom call every week. It has been wonderful to be in close contact with them! Several of my aunts and uncles have ordered a bunch of frozen crock pot meals for Jeff to fix while I’m not feeling well. I feel loved and supported by them all!
#givethanks

11/23/2020
Today I’m grateful for my physical body. My body has had a difficult year, but up until 2020 it has been relatively healthy and strong. It is easy to take your healthy body for granted until you have a serious health challenge. I now really appreciate when each body part and system works well, and I’m grateful to be alive! I have come close to death several times this year and twice in earlier years. I’m thankful to have more time on Earth to develop my faith and to serve and grow.
#givethanks

11-25-2020
Today I’m grateful for insurance! I have excellent health insurance through Jeff’s work and it has been such a blessing as I’ve gone through 3 major surgeries, 6 hospitalizations, and 6 rounds of chemo (each round costs about $20,000). My last surgery alone cost more than double our annual income, but was paid in full by insurance. I also signed up for critical illness insurance at my job two months before finding out I had cancer. That benefit has kept us afloat financially while I haven’t been able to work most of the year. Without insurance, there is no way I could have paid for all the medical care I’ve had. The windows of heaven have been open and I’m getting showered with blessings through my health challenges! ❤️
#givethanks

11/27/2020
Jeff and I went on a 3-1/4 mile walk along the Jordan River today. It was a cold but beautiful day! Here are some pictures I took.
11/28/2020
Another day, another walk along the Jordan River! We went another 3 miles yesterday afternoon.


11/29/2020
The Christmas after Cassie died (2016) was a hard one for me. Cassie Gruwell LOVED Christmas and was always the one to initiate decorating the tree and house. In order to process my pain, I started a collection of angel ornaments that year, and scoured the stores for angels. They were surprisingly difficult to find! Here are my new additions this year. 
#iloveangels



11/9/2020
I want to express my gratitude to all the medical professionals that have taken excellent care of me through my cancer journey! I have had two amazing surgeons ( Dr Crume, and Dr Zendejas) who have literally saved my life! My primary care doctor and Oncologist have also been there for me, as well as innumerable nurses. I’m so grateful for them all! 
I know that many medical professionals are overwhelmed by the large numbers of Covid 19 patients, and I’m grateful to them for their incredible efforts. Thank you for your service!! ❤️
#lighttheworld2020

12/2/2020
My mom, Aldine Allen, is the most Christlike person I know! She gives generously of her time, love, and effort to family, church, and friends! She has been my greatest long distance cheerleader as I go through cancer. This is not a recent picture of us as she lives in a different state from me and we haven seen each other this year due to the pandemic. I look a lot more like her now that my hair is its natural white color. ❤️😷
#LighttheWorld2020

12/9/2020
I want to thank my co-worker, Terra Dennis-Somers today. She was instrumental in helping me get my current job with Silverado Hospice at the beginning of this year, which was a huge blessing to me! I was replacing her as she was moving to another job. Then, two month and a half months later, I was diagnosed with cancer and had to go on an extended medical leave of absence. Terra was willing to quit her new job and come back to Silverado in my absence. I’m thankful for her willingness to do that for me, too! 
#lighttheworld2020

12/11/2020
I made 3 batches of cookies today and shared them with friends 😊. I made Melt Aways, Ginger Snaps, and Hello Dollies. I love Christmas baking! 
#lighttheworld2020

12/13/2020
Three more angel gifts arrived over the last few days!! Thank you so much to all the dear friends who have shared these treasures with me! ❤️
Later today another one arrived.

12/14/2020
I’m getting chemo #8 today. My blood work was good, and I’ve been feeling well for the last week. I’m hoping and praying that I can tolerate this dose!I had chemo around mid day today. My temp is slowly creeping up. It is 101.3. That’s high enough to feel miserable. If it keeps going up, I’ll probably have to go into the ER for IV antibiotics. πŸ˜’

12/15/2020
I’m so grateful for my parents, Aldine Allen and Larry Allen! They raised seven kids to love God and work hard! My dad passed away in 2016. I was blessed to be by his side as he slipped away. I’m sure he is one of my guardian angels as I go through cancer treatments, since he also had cancer (non-Hodgkin Lymphoma), although it was pneumonia that took him. My mom is in good health but lives far away in Arizona. I did get to talk to her twice today, though. I love and appreciate my wonderful parents!!! ❤️
#lighttheworld2020

12/18/2020
I received this amazing stained glass angel today from Vince and Jayna Friberg Cleamons! It’s about 10 inches tall, so I hung it by a window rather than on the Christmas tree. It is hard to tell in the picture, but the dress is pink, Cassie’s favorite color. ❤️

12/28/2020
I was scheduled to have chemo #9 today, but we are going to hold off for a week so that I can get the COVID vaccination tomorrow morning, thanks to my employer, Silverado Hospice. I’m grateful to get it early so that I can be protected from getting COVID. I also got my CT results today, and no new tumors were detected. Yay!! ❤️

12/29/2020
I was able to get the Moderna COVID vaccination today! My oncologist gave me the green light yesterday. I’m currently doing clean up chemo (FOLFOX). My last round was two weeks ago. We decided to delay the next round for a week so I could get the immunization. I’m excited to have this opportunity! I’m employed by a hospice company as a chaplain, so that is why I was offered the vaccine so early.
12/31/2020
To celebrate the end of 2020 we decided to get 2 puppies! We picked up the first one yesterday. It is a male border collie/Australian shepherd, 8 weeks old. We named him Scottie. The other one will be ready in a week. It is a female teacup shorkie, named Annie. Both have very similar coloring.
Scottie
Annie


12/31/2020
We went for a walk at Memory Grove Park today with Ammon, Jamie, and the boys. They were excited to meet our new puppy! Scottie did great staying right at our heels even without a leash!
Isaac loves to collect sticks.


1/1/2021
This has been a crazy year, for sure, but lots of good things have happened. Here are my highlights:
1. Got my dream chaplain job in January! 
2. Found out I had cancer before it had spread extensively in March. 
3. Jeff was able to teach online starting about the same time as my first surgery, and has continued with all online school to the present time, making him available to help me all year. 
4. We had 2 beautiful new grandchildren born this year in April and July. 
5. I had 2 amazing surgeons that did 3 life saving surgeries on me. 
6. Thanks to critical illness and hospital indemnity insurances, we have survived financially even though I haven’t been able to work since March. 
7. Teachers have great health insurance! 
8. Our daughter and her family (including one new grand daughter) moved back to Utah from Maryland!
9. I got the COVID vaccination this week. 
10. All my tumors have been surgically removed and chemo did a good job of shrinking them before surgery. 
11. We got a new puppy yesterday! 
12. I started doing weekly zoom calls with my siblings and Mom, and we have never been closer. 

We are all hoping for an even better year in 2021! 
Happy New Year!! πŸŽ‰

1/2/2021
Jeff and I went on a walk in Spanish Fork with Josh Gruwell, Lauren Jo Gruwell, and their kids yesterday. They had fun meeting our puppy, Scottie, but it was really cold. We always love spending time with family!! ❤️

1/9/2021
Don’t feel sorry for or fear for your kids because the world they are going to grow up in is not what it used to be.

God created them and called them for the exact moment in time that they’re in. Their life wasn’t a coincidence or an accident. 

Raise them up to know the power they walk in as children of God. 

Train them up in the authority of His Word. 
Teach them to walk in faith knowing that God is in control. 

Empower them to know they can change the world. 

Don’t teach them to be fearful and disheartened by the state of the world but hopeful that they can do something about it. 

Every person in all of history has been placed in the time that they were in because of God’s sovereign plan. 

He knew Daniel could handle the lions den. 
He knew David could handle Goliath. 
He knew Esther could handle Haman. 
He knew Peter could handle persecution. 

He knows that your child can handle whatever challenge they face in their life. He created them specifically for it! 

Don’t be scared for your children, but be honored that God chose YOU to parent them! Teach them God's love and to share it with everyone! 
Rise up to the challenge. 

Raise Daniels, Davids, Esthers and Peters! πŸ’ͺ🏼

God isn’t scratching His head wondering what He’s going to do with this mess of a world. 

He has an army He’s raising up to drive back the darkness and make Him known all over the earth!!!

Don’t let YOUR fear steal the greatness God placed in them. 

I know it’s hard to imagine them as anything besides our sweet little babies, and we just want to protect them from anything that could ever be hard on them, but they were born for such a time as this.

1/17/2021
We got our new puppy last night! Annie is a teacup Shorky. She and Scottie are getting acquainted today. We went on a 2 mile walk along the Jordan River today and the dogs had fun! I carried Annie at least half of the way, but she wanted to get down and run part of the time!

2/19/2021
I’m getting chemo #10 today. The chemo drug that causes the most side effects (oxaliplatin) is being reduced 50% this time, so it will hopefully go well! I have 2 more rounds after this!

1/20/2021
My sweet mother-in-law, Carol Gruwell, passed from this life tonight. Jeff’s sister, Cindy, took Mom into her home to care for her for the last week and a half which enabled many family members to visit and say our goodbyes. The care center she was in had her quarantined since the pandemic started. She will be missed, but is now having a joyous reunion with her parents, siblings, and our dear Cassie! RIP Mom! ❤️

1/21/21
At 9:21pm tonight it will also be the 21st minute of the 21st hour of the 21st day of the 21st year of the 21st century!

1/27/2021
I was supposed to get my 2nd COVID vaccination today, but when I had my blood checked yesterday, my white count was extremely low. Thus my oncologist recommended that I wait to get it. With a very weak immune system, the shot likely wouldn’t work. I’ll reschedule getting the shot when my immune system is stronger. πŸ™ I’m seriously considering canceling my last two chemo infusions so my body can recover.

2/1/2021
Jeff and I attended the beautiful memorial service for Jeff’s Mother, Carol Gruwell, on Saturday. It was wonderful to be with so many family members as we celebrated the life of Mom! Jeff’s sister, Cindy Hogan, did all the planning and prep work for the service and luncheon afterwards. It was a perfect “send off” for Mom!

2/1/2021
I was scheduled to have chemo today, but my blood counts are still too low. My white cell count is unchanged from last week (very low), and platelets went from 40 last week to 62 today. They need to be at least 75 to get chemo. I’ll get rechecked next week.
2/3/2021
I’ve called 911 twice in the last week, both for road hazards on I-15. Several days ago, there was a couch on the road in a lane of traffic. Today, we saw a truck tire rolling down I-15 all by itself in the lane next to us. Crazy!
2/19/2021
I went to an oncology appointment today, mentally prepared to have one more chemo treatment just so that I can get a shot that builds white blood cells. This shot is only available right after chemo. My blood work was checked first. The good news is that my platelets have increased quite a bit! The bad news is that my white blood cell count decreased even more. It dropped so low that I couldn’t have chemo today. I thus have one more week of chemo-cation (chemo vacation). I’m feeling a bit frustrated about that, because I have to have chemo to get the shot to boost my white cells, so that I can get my 2nd COVID vaccination. πŸ™
2/24/2021
Another heart wrenching Valentine memory! I love and miss my baby girl! ❤️
From Cassie on Facebook 2015
I just want to say that I love my parents with all of my heart! They are both AMAZING people inside and out, and they have done so much for me my entire life. I hope that someday I can be as selfless as they are. I love you mom and dad.❤️❤️❤️
2/17/2021
I went to the oncologist today, and the blood work showed improvements to platelets, white and red blood cells! My numbers were high enough for chemo for the first time in 4 weeks! I agreed to have it, minus the oxaliplatin (the drug with the most side effects). It wasn’t bad at all (at least so far!) I will get a shot to boost white cell production on Friday, then I should be ok to finally get my 2nd Covid vaccine in the next week or so. 
Upcoming tests include a hearing and balance test tomorrow for a weird eye vibration problem I’ve been having, a colonoscopy in 3 weeks, and more scans in April to check for reoccurrence.
Thanks to my daughter, Larissa, for sending us a yummy Hawaiian dinner for chemo day! ❤️
2/26/2021
I’m a member of several colon cancer related Facebook groups. On one of them, someone asked what symptoms people had before being diagnosed with colon cancer. 260 people responded, many with multiple symptoms.
I tabulated all the responses and came up with this: 
90 had blood in the stool
85 had pain (abdomen, back, or rectal)
71 had fatigue/anemia
61 had diarrhea, constipation, or change in bowel habits
51 had no symptoms 
19 were bloated
17 had weight loss
17 had nausea/vomiting 
8 had thin poop
7 felt urge to go, but couldn’t
5 had fever
1 or 2 had a lump, jaundice, noisy bowels, or perforated colon
It’s scary how many had NO symptoms and found out during a routine colonoscopy! Also many commented that they mentioned their symptoms to their primary care doc, but they were told the bleeding was just hemorrhoids or that they had an irritable bowel. Getting a colonoscopy is the gold standard to finding cancer, so get one at age 45 (the new age recommendation) or if you have any troublesome symptoms as listed above! Many people younger than 45 get colon cancer. I know of a 10 year old, several teenagers, and many in the 20’s and 30’s.
3/2/2021
Response to someone's post on Facebook 
My hair thinned A LOT during my first 4 rounds, but grew back and was more curly. After a long chemo break for 2 surgeries, I didn’t have any thinning when I re-started chemo but without the Avastin. 
I also want to tell you about icing your hands and feet during the oxaliplatin infusion. Doing this slows blood flow to them and limits the toxic exposure to the drug on your nerves. This makes you have less cold sensitivity and neuropathy after chemo. You can also sip icy drinks to help protect your mouth and throat. Let me know if you want more info about this. I iced during all my oxaliplatin infusions and had great success!
3/3/2021
I met with my oncologist today and declined my last chemo. I'm now finished with active treatment! My scan last week was clear of cancer! I'm just 11 days away from my 1 year diagnosis anniversary.

3/7/2021
I have my one year colonoscopy this week. This will be my third one. I had my first one 6 years ago—totally clean, then my second one last March after a tumor was found in my colon by a CT. After a year of treatment (chemo and 3 surgeries) a recent CT was clear, but I’m still a little nervous! 😬
3/8/2021
I have my one year colonoscopy this week. This will be my third one. I had my first one 6 years ago—totally clean, then my second one last March after a tumor was found in my colon by a CT. After a year of treatment (chemo and 3 surgeries) a recent CT was clear, but I’m still a little nervous! 😬
3/10/2021
What a beautiful thought!
3/22/2021 
My maternal grandfather, Wally Gibson, will have his 100th birthday next Tuesday. He was so excited to reach this milestone! Sadly he passed away a little over 4 years ago. I’ve been wanting to have a celebration for him, and last night I “randomly” stumbled across this park in Sandy when I was walking my dogs along the Jordan River. Grandpa was a huge fisherman and loved sharing this hobby with his grandchildren. I’m sure he was guiding me to find this park! Anyone who knew and loved Wally and lives in the area is welcome to join us at 5 pm next Tuesday! Each family will bring their own picnic and I will supply the cake. Bring fishing supplies if you have them! ❤️πŸŽ‚πŸŸ

3/29/2021
I went to church in person yesterday for the first time in a year! It was so wonderful to be able to do that now that I’ve had the vaccine and completed chemo! I love my church family and all the support they give me! ❤️

3/30/2021
I’m so grateful for wonderful doctors/surgeons that have literally saved my life! From the ER doc that found my cancer, to my surgeons who cut it out, and everyone in between (oncologist, wound care doc, Neuro Opthamologist, retina specialist, internal medicine doc, chiropractor, etc.) I’ve been very blessed! Thank you!! ❤️

4/3/2021
It is so wonderful to see my yard wake up! Easter is my favorite time of year as nature re-enacts the Resurrection of our Savior! I love the message of Easter that we will live again after we die, just as Jesus did! I’m really enjoying watching General Conference today, filled with messages of love and peace!

4/28/2021
I recently asked my good friend and fellow colon cancer survivor, Mona Rae Cich, to make a memory quilt from Cassie’s shirts. I just got it in the mail today and I love it!! Mona Rae hand quilted it and it is stunning! She has an Etsy shop (MROriginals) and a business Facebook page (Mona Rae Originals) if you want to check out her other amazing products. She is very gifted! ❤️

4/30/2021    
I was finally able to discuss my recent PET scan with my liver surgeon today. He said it looked good, with no new metastatic tumors! There is one spot on my liver on the margin of where a tumor was removed that very slightly lit up. He will biopsy that place when he does an incisional hernia repair in June. I will have to be in the hospital for a few days for that surgery.
Other news: I’m going to start working limited hours next week with Silverado Hospice! I’m excited to work towards resuming normal life!

5/1/2021
I love this song!! It brings me to tears every time I hear it lately! “I see the evidence of Your Goodness all over my life...” This is so true in my life as I am now in remission from stage 4 cancer. I’m very grateful for this blessing! Even if cancer eventually takes me, I still will thank God for the goodness He places all over my life! ❤️
Evidence - Josh Baldwin | Evidence (Evidence) · Josh Baldwin (Official Music Video)

Released Oct 2, 2020

5/6/2021
I feel so blessed today! I’m feeling stronger, I’m in remission, and I started back to work today! I’ve been on a medical leave of absence for 14 months. I’m so thankful to work for a wonderful company (Silverado Hospice) that held my job for me. I’ll work part-time/on call for 3 months then see how I’m doing at that point. I may keep these hours or go back to full-time work.

6/14/2021
Heath update: I’m getting an iron infusion today because my ferritin (iron storage—I had to look it up) is low. I’m also scheduled to have hernia repair surgery on Wednesday. I’ll be in the hospital for a few days then recovering for a few weeks. Prayers appreciated!! ❤️

6/18/2021
I’m still in the hospital and fighting with a lot of pain. πŸ˜₯I hope to go home tomorrow.
Comment from her past bishop:
Shauna, thank you for all that you have done for so many people for all the years I've known you. You have been such a strong, positive, compassionate example to me and to so many others. As President Nelson has counseled us, we must not be "miopic"--we must keep the long-term view of life and what is truly important. You are loved and supported by so many people, and most importantly, the Lord loves you and knows you personally by name. You are one of His valiant disciples.

7/4/2021
Happy Independence Day!! I enjoyed a great fireworks show last night with Jeffrey Gruwell, Larissa Wiscombe, Gentry Wiscombe, and their sweet Lumina. Today, Jeff and I went to church in the morning, then had a visit from Ammon Gruwell, Jamie Lynn Gruwell, and their cute boys in the afternoon. As far as a health update, my biopsy came back clean! I’m still struggling, though, with a lot of pain and an incision that doesn’t want to heal. I had an ultrasound sound yesterday that showed some pockets of fluid, but they are not infected. Hopefully I will start feeling better soon!

7/7/2021
I saw my surgeon’s PA today. She checked my wound and had to cut away some dead tissue on my incision. I now have a couple of small holes that need to be packed to help them heal. I will also return to the wound clinic. Here we go again! 😬 The good news is that it doesn’t appear to be infected! 😊

7/13/2021
I was in the ER last night due to increasing post op pain. They did a CT to check for possible fluid build up and found 2 new spots on my liver that are very likely cancerous. This is my first recurrence so I’m not sure what will happen now. My liver doctor said they are treatable. I’ve been half way expecting this to happen, but it is still pretty devastating! I continue to have faith in God’s Grace and healing and I recognize that death is the ultimate form of healing—there is no sickness or pain in the next life! I also continue to see the evidence of His Goodness all over my life! Prayers appreciated!

7/14/2021
I’m getting some fluid drained from my belly today 😬. I’m hoping it will relieve some pressure and reduce my pain!
Update: the procedure went well! I’m home now and the pain is indeed reduced! The fluid did not appear to be infected. The pathology report in a few days will confirm.

7/15/2021
It looks like I will be getting on the cancer treatment roller coaster again!πŸ˜₯ I saw my liver surgeon today. He showed me the CT scan from Monday. The biggest tumor is about golf ball size and is about half way up the lower edge of my liver. The smaller one is right at the bottom tip. It’s approximately 1 cm across. He recommended that I take about 4 weeks to get my incision wound to heal up, then do 6 rounds of chemo, followed by another liver resection. They will probably have me do more chemo after. It’s kind of a repeat of last year, minus the colon surgeries. He is still working towards a cure, so that is good news!

7/16/2021
This is my new theme song! It is incredibly beautiful and has the perfect message for me, speaking physically and spiritually! Physically, I have a literal crevice in my belly and lots of pain. Spiritually, I need wholeness, too!
Song - Whole sung by Lauren Gruwell.

7/18/2021
I’m having a rough weekend so far πŸ˜₯. I have A LOT of abdominal pain, especially in the area of my liver. I will see my oncologist on Monday to map out a treatment plan. I probably will start chemo sooner rather than later, maybe in the next week or so. My wound clinic doc recommended not waiting for my wound to heal since the tumors are so fast growing. I’m wondering if that is the source of my increasing pain, in which case, let’s get chemo started. I will also get a chest CT on Tuesday to check for lung mets. Hopefully the cancer is limited to my liver. Right now I’m praying for relief from pain and strength to get through chemo. I know I’m in God’s hands! 
Another reason for a lot of tears today is that a young boy I’ve been following on Facebook, named Jayden Oakes, passed away today from colon cancer. He was only 13 years old! He was diagnosed at age 11. Heart wrenching!!! πŸ˜₯

7/20/2021
We had a wonderful time at Ammon Gruwell and Jamie Lynn Gruwell’s house on Sunday celebrating Peter’s first birthday! It was hot outside (104 degrees), but lots of fun! The theme was “Wild one”. I’m so glad I felt up to going after a rough day the day before! Happy birthday, sweet boy! ❤️

7/21/2021
I had a chest CT yesterday to check if the cancer has spread past my liver. Thankfully, it came back clean!! I’m so relieved and happy!! I will meet with my oncologist tomorrow to plan the chemo, then have a 2nd liver resection in about 4 months, if all goes as planned! 😊

7/23/2021
Here is my new treatment plan: 
1. I got a wound vac this week to encourage my surgical wound to heal. 
2. I will start two new medicines (targeted therapy, not chemo) on Thursday. One is in pill form to be taken everyday, the other is an IV infusion once a week. Although these are not chemo, the side effects are similar to chemo. 
3. Hopefully I will have another liver resection around November. 
4. I will continue with the targeted therapy until it stops working. After that, probably more chemo. 

I’m nervous to try the targeted therapy(it’s called the Beacon Doublet) because of some scary potential side effects, but I believe it is my best option right now to slow or stop the rapid tumor growth. I’m also going to try again to eat more of a vegan/vegetarian diet and limit sweets. I’ll work into it more gradually than last time, and maybe it will stick longer!

7/29/2021
I had my first infusion today and also talked to my liver surgeon. The infusion went well, with no side effects so far! My liver surgeon said he wants to wait 6-12 months before another surgery to make sure there is no progression of cancer growth or spread. After that, I could potentially have another resection or even a transplant! I’m feeling a bit more hopeful! 😊❤️

8/6/2021
I had my second infusion of my new medicine yesterday. The first one made me really sick last weekend, but this time it’s not bad, at least so far!  
The worst symptom I’ve had lately is total exhaustion. 
I get a break from my wound vac for the weekend to let my skin around my wound heal a little. Yay! I feel free! It’s annoying to have a piece of equipment attached to your body 24/7. It will be reattached on Monday.

8/18/2021
I had liver surgery one year ago today! I’m so thankful for a great surgeon that prolonged my life! I now have new tumors in my liver and will probably have another liver surgery in the coming months.

8/27/2021
Today would have been Cassie and Spencer’s 5th anniversary ❤️πŸ˜₯. I’m missing my sweet daughter today! I’m blessed that Cassie insisted on getting her bridal pictures taken really early!

8/29/2021
I’m vaccinated and, no, I don't know what's in it - neither this vaccine, the ones I had as a child, nor in the Big Mac, or in hot dogs, or in other treatments…whether it's for cancer, for arthritis, or vaccines for infants or children. I trust my doctor when he says it’s needed. 
I also don't know what's in Ibuprofen, Tylenol, or other meds, I just know they cure my headaches & my pains ...
I don't know what's in my soap or shampoo or deodorants.  
I don’t know the long term effect of cell phone use or whether or not that restaurant I just ate at REALLY used clean foods and washed their hands. 
In short ...
There's a lot of things I don't know and never will… 
I just know one thing: life is short, very short, and I still want to do something other than just going to work every day or staying locked in my home. 
I still want to travel and hug people without fear and find a little feeling of life "before".
As a child and as an adult I've been vaccinated for mumps, measles, rubella, polio, chicken pox, and quite a few others; my parents and I trusted the science and never had to suffer through or transmit any of said diseases ... 
just saying.
I'm vaccinated, not to please the government but:
* To not die from Covid-19.
* To NOT clutter a hospital bed if I get sick.
* To hug my loved ones 
* To not have to do PCR or antigenic tests to go to a restaurant, go on holidays and many more things to come ...
* To live my life.
* To have my kids/grandkids go back to school and play sports. 
* For Covid-19 to be an old memory.
* To protect us.
(Text copied, you can too.)

9/1/2021
I had another CT today due to some abdominal pain I have. I was so very grateful to learn that the weekly infusions I’ve been having for the last month have shrunk the two tumors in my liver significantly (the largest one went from a diameter of 3.9 cm to 2.7 cm) and no new spots have shown up!! I’m still not sure what the pain is from, but it is not from new or growing tumors! Thank you to the many people who have been praying for me!! ❤️

9/6/2021
This means a lot as I face my own mortality! I firmly believe that our spirits live on after death and watch over our loved ones! Family relationships can continue in Heaven. ❤️
This is so beautiful. I was crying by the second line, Written by Henry Scott Holland (27 January 1847 – 17 March 1918) was Regius Professor of Divinity at the University of Oxford

9/24/2021
Thank you to everyone for all the birthday love this week!! I had a great birthday! We celebrated with a family dinner on Sunday, then Jeff took the day off on my birthday and we took a drive in the mountains with our pups. Then last night, Larissa took me to a ceramic painting place and out to dinner! Fifty-seven never felt so good! ❤️
Using bubble technique 
Dinner at a Thai restaurant 

10/5/2021
I had a good visit with my liver surgeon today. He initially said he wants to wait 6-12 months before doing another liver surgery to remove the tumors, but when I explained my reasons for wanting to do it sooner, he agreed to do more scans in 2 months and schedule surgery if they look good. He said my last scan was amazing after being back on treatment for just shy of 2 months! I’m grateful to have a wonderful medical team working with me! 😊



11/3/2021
Lessons from a songbird! ❤️🎢
(Shauna reposted this from someone else.)
This is my first time posting about this. It has been a very special experience for me. 

On October 6th, I got up from a very restless night. I had not slept well and had a lot on my mind and on my heart. I took Mason to school. I was pulling down my street when I noticed this little guy in the road. I pulled to the side of him thinking he would fly away as my car approached. As I went by, I noticed he did not move. I looked in my side view and he was still there. I pulled my car over and started walking towards him. As I walked towards him, I expected him to either fly or at least start struggling to get away. He did not move. I walked straight to him and picked him up. He never attempted to struggle away from me as you can tell by the pictures, I did not have to restrain him at all. I examined him and saw no sign of injury. Yet I knew something was not right. I pulled him close to my heart and began to gently pet him. I decided I would take him to the CNC. They help a lot of wildlife. It would be a couple of hours before they opened. As I continued to hold him, there was an immediate bond. He would look me right in the eye and put his beak to my nose. I was finally able to take him to CNC. Unfortunately for this little guy, they do not take songbirds. Only birds of prey. However, they were kind enough to examine him. Upon examination, they were able to determine he had broken his clavicle. They told me just like humans, it is very painful for the birds. 
The thought is he was hit by a car. They recommended a place to take him. It is located in Decatur, which was going to take a little over an hour one way with traffic. I had a full day and did not know how I could do it. As I sat in the car trying to decide what I was going to do, he sang. I stop my thought process and looked down at him. He was looking at me from the little box I had him in. As I continued to look at him he let out a couple of more little notes. Tears began to fill my eyes. Here this tiny little creature was, in pain with a broken clavicle, and yet, he still sang. I sat there for a few minutes just looking at him. I reached over and gave him a gentle stroke on his head and said, thank you, little guy. 
I called Seth and asked him to reschedule all of my meetings for the day. I called the songbird place and a wonderful human by the name of Nancy told me to bring him in. I took off to Decatur. When we arrived, Nancy examined him and confirmed he had a broken clavicle but that his air sacs were full as well and needed to be released. She explained to me the process and told me he had a three to four-week recovery ahead. She let me know that some make it and some do not because of the uncertainty of what he may have going on internally due to being hit. She also informed me that if he did make it, then at the end of his recovery he would need to be released where I found him. Cardinals generally have a family. He has had a rough road. There were a couple of times she wasn’t sure he was going to make it, as he stopped eating a few times. He pushed through. I am able to pick him up on Monday to release him back into nature. I share this experience with you because this little bird reminded me that we can still sing even when we are struggling. When we are struggling and in pain, we can still make a difference. He reminded me that every living thing is significant, no matter what. If it has life, it deserves love. It is a birthright! 
He reminded me to stop, take it slow, and always, ALWAYS, let love lead. On a day when I was struggling with some pretty heavy things, he reminded me to…sing!!

11/20/2021
Today was Annie’s first birthday! πŸŽ‚ Scottie turned 1 two weeks ago. We had a little birthday party for them both today. We went to a doggie bakery (yes, that’s a thing!) and got some dog-friendly cupcakes for them. The bakery also gave us the birthday hats. 😊 That plus Costco rotisserie chicken for dinner and a new toy rounded out the celebration!πŸ˜ŠπŸŽ‰

11/30/2021
Health update: I’ve been feeling pretty good lately, mainly just weak/tired. I’ve been getting a targeted therapy for a bad mutation in my tumors. I have 2 in my liver, per the last scan in September. I’m scheduled to get a new scan in two days (Thursday). On Friday I will have a heart echo and an appointment with a cardiologist. My recent tiredness might be due to a heart problem. If you could keep me in your prayers, I would appreciate it! I’m hoping for: no new tumors and shrinkage in the two in my liver, no serious heart problems, liver surgery scheduled for December or January.

12/14/2021
I have an appointment with the genetic counselor in mid January, and the test will take a few weeks to process. Hopefully we will have some answers by the end of January. 
I met with my liver surgeon today, and he is willing to do surgery! He is leaving the country for 2 weeks for Christmas, so the soonest date is December 30, or sometime in the first 2 weeks of January. It will be an open surgery, so a rough recovery, but I’ll take whatever he is willing to do!

12/29/2021
Surgery day is almost here! I’m scheduled for my second open (not laparoscopic) liver resection tomorrow at 1:15 mountain time zone. Prayers are greatly appreciated! I’m praying for my surgeon’s hands to be guided, for no complications, for all cancer to be found and removed, and for a quick recovery. I’ll post the results as soon as I’m able to do so. ❤️πŸ™πŸ» I’ll probably be in the hospital for about 4 days after.

12/30/2021
I’m all ready for liver surgery and will probably start early! They are about to take me upstairs!

12/30/2021
From Jeff:
Shauna’s operation is concluded. Her surgeon said the operation went well. He was able to cut out the two tumors and it does not appear that there is any remaining in her liver at this time. She’ll be going through recovery for about the next 2-2 1/2 hours. We thank you for your prayers, your love and your concern. We’ll keep you posted as her condition improves.  

12/31/2021
I came through surgery just fine! The surgeon believes he got all the tumors! I’m not having much pain, thankfully. I have a big incision, about 7-8 inches long, going across my upper abdomen. I’m not sure yet when I will be going home. Thank you for all the love and prayers!

12/31/2022
Shauna is having some problems. She walked to and from the bathroom and became out of breath. 30 minutes later she was still out of breath. They are going to take a chest X-ray and an ekg. Please continue to pray for her!

1/1/2022
The EKG was fine, but the chest X-ray showed something in my lower lungs. I haven't talked to a dr about it yet. I also have a fever. 
I'm feeling a little better this morning! My Covid test was negative. The chest X-ray and chest CT showed some fluid building up in the lower part of both lungs. That puts me at high risk for developing pneumonia. I'm supposed to do deep breathing and walking to get the extra fluid out. Someone from cardiology will see me today. 

I just now talked to the cardiologist. He is going to give me a diuretic to try up get done of the excess fluid out. They are also going to do an echocardiogram later today. The cardiac enzymes are dropping now, so they are not worried about blood clots. 

1-3-2022
I’m slowly doing better after surgery last Thursday, but I’m still in the hospital, probably for another day or two. I’m so glad to have all known cancer removed! I can take another day or so in the hospital.

1/5/2022
I’m happy to report that I’m finally home from the hospital! My doggies were so excited! ❤️

1/28/2022
I met with my oncologist yesterday and got the genetic report on my recently removed tumor. It turns out that a new strong amplification/mutation in the MET gene turned up. That is probably why the tumor started growing again right before it was removed. There is another targeted therapy available for this mutation, so I will most likely switch over to the new treatment in about a month. We have to get approval from my cardiologist and my insurance company first. I’m glad to have a new plan in place!

I met with my oncologist yesterday and got the genetic report on my recently removed tumor. It turns out that a new strong amplification/mutation in the MET gene turned up. That is probably why the tumor started growing again right before it was removed. There is another targeted therapy available for this mutation, so I will most likely switch over to the new treatment in about a month. We have to get approval from my cardiologist and my insurance company first. I’m glad to have a new plan in place!
Denise Chapin Zientek I’ve been on the targeted therapy of Beacon Doublet (Braftovi and Erbitux) since July for my BRAF mutation. I did FOLFOX before that. I can’t remember the name of the new targeted therapy we will likely try. I did have troubles with low platelets while taking FOLFOX, but I’ve been ok since then. I also take milk thistle now, although I didn’t while on FOLFOX.

2/8/2022
For the second time, I am having some abdominal pain about a month after surgery. A CT scan was ordered each time to find the cause. Both times, no cause for the pain was evident on the scan, and both times, the pain greatly diminished after the scan. 
The most important fact of this story, is that both times a new tumor or two was found in my liver. It feels like divine intervention to help me and my doctors find the new tumors sooner rather than later. My scan yesterday found a new 1 cm liver tumor. I didn’t get much time free of cancer this time (about 6 weeks) but I’ll keep working on fighting it! I see my oncologist on Thursday to discuss. Prayers appreciated!

3/17/2022
My scan two days ago came back clean—no lesions seen!! I also started a new medication today to fight any remaining cancer cells, since the prior one wasn’t doing the job very well. Hopefully it will work well and have minimal side effects! The new medicine is in pill form only, so no more all day infusions every other week. I’m so very grateful! ❤️
3/27/2022

I have a new and highly annoying side effect from my new cancer medicine—a horrible acne rash all over my face and scalp. I’ll spare you a visual. It was just starting when I saw my oncologist on Thursday, so he gave me an antibiotic. In spite of that, it has only gotten worse over the last few days. I’m going to stay holed up at home until it improves! 😬

3/31/202
I am so happy to report that a liquid biopsy blood test came back negative for cancer cells!! This is a very good indication that there are no lesions/tumors growing in me now! The last negative test was last March. I get these tests every 2 months. It’s time to celebrate!! πŸ₯³πŸŽ‰ 
The rash on my face and scalp is still a problem, but not as bad as it was. Hopefully it will resolve in the near future!

5/21/2022
I was diagnosed with obstructive hypertrophic cardiomyopathy 6 months ago. It is a genetic disease but aggravated by cancer treatment. My symptoms are getting worse, so I’m having a surgical procedure in 2 weeks to try to repair things in my heart. I’m nervous but hopeful! 😊 On the cancer side, my last scans were clear.

5/24/2022
I’m having a rough day today—lots of bad news. One was that some cancer cells were found in a blood test. I will get an MRI next week to try to locate it. The other things are not cancer related, but equally bad. Prayers appreciated! πŸ˜₯

The bad news causing most of my tears today is that my cousin’s beautiful and precious 14 year old daughter just passed away after a very brief Illness. It brings back so many memories of losing my daughter, Cassie Gruwell! πŸ˜₯ 
This is my cousin and her daughter ❤️
6/9/2022
I came through my heart surgery ok today! I’ll be in the hospital for a few days. I’m having a fair amount of pain, but that hopefully will diminish before too long. Thank you for the many prayers! ❤️

Update: I’m feeling better today, but will be getting a permanent pacemaker installed tomorrow afternoon.

6/12/2022

Latest health update: 
I got home from the hospital on Friday afternoon. I’m still feeling pretty tired, but I was able to go to a bridal shower and dance recital yesterday, then church and a family party today, so I must be doing ok! My follow up cardiology appointment is next week. I feel so blessed to have such love and support from church, family, neighbors, and so many dear friends!

06/22/2022
After I had the pacemaker installed 2 weeks ago, I started to have weird “tapping” and sometimes zapping sensations in my heart. Sometimes this is quite painful! I complained about it at my follow up appointment, so they ran some diagnostic tests on it and discovered that one of the leads/wires is using too much electricity to pace my heart and is likely in a bad location. They will have to re-do the surgery to move the lead to another location in my heart. This is supposed to be an outpatient procedure. Let’s hope so! 
Other than that I’m doing ok! I’ll have a PET scan in a month to look for the pesky new tumor. πŸ‘€

6/30/2022
I’m about to have my pacemaker surgery re-done. One of the leads is in a bad place and it causes me pain when it is pacing my heart. I’m hoping this is a permanent fix!!

Update: the surgery went well and I should be home this afternoon! 😊

7/28/2022
Health update: I had a PET scan yesterday that showed a 2 cm liver tumor, and a 1 cm suspicious spot on the inside of my abdominal wall. My liver surgeon looked at the scan and says that it will have to be surgically removed. I have to get another MRI first, so we are probably a couple weeks from surgery. Here we go with round 3 liver resection!

8/3/2022
We had a fabulous extended family vacation in Yellowstone and Teton National Parks this week! We all stayed in a large cabin in Island Park for two nights, then Jeff and I camped out with Ammon and Jamie for 2 nights. In addition to seeing a beautiful part of the world, we also commemorated Cassie’s 6th angelversary and 27th birthday (July 29th and August 2nd).
8/5/2022
Surgery update: I’ve had 2 scans in the last week and met with my liver surgeon today. The tumor in my liver is in a tricky spot right next to a large blood vessel, but close to the edge of the liver. I will need to have an open liver resection to remove it. This will be my 3rd such surgery. I’m glad that it CAN be removed, although I’m reluctant to be cut open again. 😬 Surgery is scheduled for August 17th, which is somewhat difficult, as that is the first day of school for the kids where Jeff teaches.

8/16/2022
My next big surgery will be in the morning at about 9:30 Mountain time. I’ll add an update when I’m awake enough, probably in the evening or the next day. Prayers requested! 😷

8/20/2022
Barring any complications, I should be going home from the hospital tomorrow! Yesterday was a difficult day with lots of post-op pain, but today is better. 😊 My daughter, Larissa Wiscombe, will be with me during the day while Jeff is working. I’m so grateful for all the love and support you each have shared with me!

09/09/2022
Health update: it’s been 3 weeks since liver surgery. I’m making slow improvements each day. It feels like it is taking forever, though. This was my 5th surgery in the last 9 months, so I guess it is to be expected. I’ll meet with my oncologist on Monday to discuss future plans. The good news is that I’m back to NED (no evidence of disease) for the 4th time!

09/19/2022
I could use some extra prayers this week! I was very sick all weekend from side effects of a new cancer therapy. I’m going to do a treatment vacation to recover. Hopefully this won’t cause the cancer to come back with a vengeance!

Update: I stopped taking the pills that were causing so much misery and canceled the infusion I was supposed to get today. I’m feeling much better this morning! I’ll discuss what to do next at my appointment on Thursday.
Thank you all for your love and prayers!! ❤️

09/21/2022
Thank you so much to the MANY dear family and friends that sent birthday wishes and love to me today!! I was grateful to be feeling well, and had a fun-filled day with Jeff, Larissa, Gentry, and Lumina! I received a wonderful gift from Larissa, who gathered letters from family and friends expressing their love for me! I had many happy tears reading the beautiful messages! I love and appreciate you all! ❤️ Here is a cute video of Larissa and Lumina singing to me today ❤️
https://www.facebook.com/1451264982/posts/pfbid07cEkxhXLbiUXUdDVJpkWgeDXFRoJT7wzRZ64SCJ828R1bQyBaBTKUvX6SCDXBkRYl/

2/1/1022
It has been a while since my last health update. I got good news today! I’ve been cancer free since my last surgery in August! My liver was clear in the scan I had on Monday, and liquid biopsy results were negative for cancer DNA! I’m getting an iron infusion today, so the anemia should be less of a problem, and the immunotherapy I’m receiving every 2 weeks has no side effects. I still feel very tired all the time, but I’m doing great in every other way. 😊 I’m so very grateful to be alive and doing well! Thanks to all who have been praying for me!

1/27/2023
I’m very happy to report that my last 3 scans and last 3 liquid biopsy tests were all negative!! It’s a true miracle!! My iron is also in the normal range for the first time in about 3 years. I’m feeling hopeful and strong, and so very grateful to be free of cancer! I’m thinking about going back to work part-time and getting back to “normal life” again. 😊 This is me with my amazing oncologist, Mark Lewis. His inspired efforts have helped me get to this great place 😊
3/14/2023
March 14 was my “Cancerversary”!  I’m amazed and thrilled to be alive and in remission three years after being diagnosed! A huge thank you to God, my prayer warriors, and my medical team!! πŸ’™

#Godisgood

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